二、国际癫痫社:

  该组织成立于1961年,到目前(2006年)共有96个会员国,非医学组织,该组织的宗旨是:

  1、促进癫痫病人生活质量的提高;

  2、提高公众对癫痫的认识和关注;

  3、对癫痫患者提供社会支持;

  4、鼓励和培养癫痫患者的独立生活能力;

  5、对相关的病人社会研究提供支持;

    The International Bureau for Epilepsy (IBE) was established in 1961 as an organisation of laypersons and professionals interested in the medical and non-medical aspects of epilepsy. The IBE addresses such social problems as education, employment, insurance, driving licence restrictions and public awareness. The Bureau also works in close liaison with the International League against Epilepsy (ILAE), an organisation of medical professionals involved in the medical and scientific issues of epilepsy. IBE is funded mainly by membership dues from its chapters and by financial support from other contributors.

    Information about the International League Against Epilepsy

    ILAE has national chapters in 96 countries with over 15,000 members. Each national chapter has elected officers and members who are doctors and other health care professionals interested in epilepsy.

    ILAE has a Executive Committee of nine people, with officers elected for four year terms by the national chapters.

    ILAE is funded from membership fees, Epilepsia subscriptions, congresses and from sponsorships and charitable donations.

    ILAE has offices in Brussels, Belgium, Connecticut, USA and an Information Centre in Zurich.

    ILAE publishes an official journal, Epilepsia, which is the leading, most authoritative source for current clinical and research results on all aspects of epilepsy.

    ILAE publishes a membership newsletter, Epigraph, which is sent out twice a year.

    ILAE holds scientific congresses on a regular basis:

International congresses every two years in conjunction with the International Bureau For Epilespy (IBE)

Regional congresses in each of its regions every two years

National congresses annually by each national chapter

    ILAE has formal links with the World Health Organization (for the Global Campaign Against Epilepsy) and with the International Bureau for Epilepsy (the worlds leading lay persons epilepsy association), the World Health Organisation and the International Bureau For Epilepsy.

    ILAE also conducts, in conjunction with WHO, a global campaign entitled “Out of the Shadows” the aim of which is to increase public and professional awareness of epilepsy, as a universal treatable brain disorder.

    ILAE organises and runs Commissions and Task Forces on specific epilepsy topics.    

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