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二、国际癫痫社:
该组织成立于1961年,到目前(2006年)共有96个会员国,非医学组织,该组织的宗旨是:
1、促进癫痫病人生活质量的提高;
2、提高公众对癫痫的认识和关注;
3、对癫痫患者提供社会支持;
4、鼓励和培养癫痫患者的独立生活能力;
5、对相关的病人社会研究提供支持;
The International Bureau for Epilepsy (IBE) was established
in 1961 as an organisation of laypersons and professionals
interested in the medical and non-medical aspects of epilepsy.
The IBE addresses such social problems as education, employment,
insurance, driving licence restrictions and public awareness.
The Bureau also works in close liaison with the International
League against Epilepsy (ILAE), an organisation of medical
professionals involved in the medical and scientific issues of
epilepsy. IBE is funded mainly by membership dues from its
chapters and by financial support from other contributors.
Information about the International League
Against Epilepsy
ILAE has
national chapters in 96 countries with over
15,000 members. Each national chapter has elected
officers and members who are doctors and other
health care professionals interested in epilepsy.
ILAE has a Executive Committee of
nine people, with officers elected for four year
terms by the national chapters.
ILAE is funded from membership
fees, Epilepsia subscriptions,
congresses and from sponsorships and charitable
donations.
ILAE has
offices in Brussels, Belgium, Connecticut, USA
and an Information Centre in Zurich.
ILAE publishes an official journal,
Epilepsia,
which is the leading, most authoritative source for
current clinical and research results on all aspects
of epilepsy.
ILAE publishes a membership
newsletter, Epigraph, which is sent out twice a year.
ILAE holds scientific
congresses on a regular basis:
International congresses every two years in
conjunction with the International Bureau For
Epilespy (IBE)
Regional congresses in each of its regions every
two years
National congresses annually by each national
chapter
ILAE has formal links with the
World Health
Organization (for the Global Campaign Against
Epilepsy) and with the International Bureau for
Epilepsy (the worlds leading lay persons epilepsy
association), the World Health Organisation and the
International Bureau For Epilepsy.
ILAE
also conducts, in conjunction with WHO, a global
campaign entitled “Out
of the Shadows” the aim of which is to increase
public and professional awareness of epilepsy, as a
universal treatable brain disorder.
ILAE organises and runs
Commissions and
Task Forces on specific epilepsy topics.
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